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Diagnosed with MAC but not being treated

MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)

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@karissy

I feel like I should reply to this. I was diagnosed August 2021. I have not been on antibiotics and have no symptoms. I have Mac and mild bronchietasis. My ID doctor wants to wait and watch also. He says he has a lot of patients that have gone on at least 20 years and haven’t needed to take the antibiotics. Then he has a few that do. He has stressed on airway clearance and exercise. I am very faithful to do both. I walk no less than 5 miles a day . I do not want to take the antibiotics and don’t think I would but I never say never. He at least gave me hope knowing that it is possible to never have the treatment. I boil my water and am very careful to use a mask once in a while when needed. I use a mask in the shower and know even wear a mask when I wash my hair in the sink. I have heard to many horror stories when people take the antibiotics and was told by my ID that you can’t get rid of it no matter what. It always returns. I am 72 and very much more concerned about the damage the antibiotics do to your organs ,eye sight,and hearing. So all I am saying is don’t give up . Keep exercising and do your airway clearance faithfully.There is hope.

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Replies to "I feel like I should reply to this. I was diagnosed August 2021. I have not..."

Can I ask how/why you were diagnosed or tested since you don’t have any symptoms? Were you tested for an unrelated condition?

I actually had a fall where I hit the side of my bed and felt like I had injured my rib cage. I went to the doctor and asked her to do a CT scan because I had thought that I had may be broken a rib. I was surprised when the CT scan came back with bronchiectasis and Micro Bacteria. I then saw several doctors who did many many blood tests and found nothing. They could not find a cause for any of it. I then reached out to Cedars Sinai in Los Angeles, and found a Doctor who did a scope into my lungs, and then came back with the results of MAI. I had no signs that would have related to me having this and of course I have no idea how I got it. I to have always been extremely healthy never having any issues and watched my diet . It was just by coincidence that it was found and the doctor said it was very good that I found it early. The soreness from my rib went away, but it was the reason I had the test done and found all of this.