Hi mbg20,
My husband has recently had a small bowel resection on Feb 27. He originally had a 3 inch section removed with the primary tumor site that was not known to be NET during an emergency hernia repair. He had a CT and PET scan. The cancer was stage 4 grade 1, slow growing. It had metastasized to the liver and lymph nodes. No further tumors showed in the small intestine on the scans. The surgery on the 27th they felt the entire small intestine and found 6 more bee bee sized tumors. They removed 2 feet of the small intestine at that time along with nodes, partial liver removal, gallbladder and appendix. He has not had any diarrhea and is not on any meds yet. He was told the same thing as you because they don't know until in the surgery. I hope your outcome is positive.