← Return to Stopping Octreotide???

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Stopping Octreotide???

Neuroendocrine Tumors (NETs) | Last Active: Apr 2, 2023 | Replies (6)

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@ahtaylor

@sophiarose, I had to stop taking octreotide due to an anaphylactic reaction. Due to significant issues with hypoglycemia, I did a desensitization procedure to octreotide and have recently restarted the medication. I, like @phyllisden, don't know of any reason you cannot stop or restart the medication, but I agree with @phyllisden, that needs to be a conversation with your doctor. Every patient situation is different. I have not had issues with my liver enzymes with the medication, although they do monitor them monthly.
I recommend writing down your questions and concerns before you go and talk with your doctor. You may also want to take a trusted person with you to listen as well. Best wishes to you and your journey!

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Replies to "@sophiarose, I had to stop taking octreotide due to an anaphylactic reaction. Due to significant issues..."

Thank you
I have tons of notes
I am happy to hear I can stop and restart
I did a lot of research and really didn’t find anything to helpful with that
I will be getting a MRI first week of April
I will share the results
Again thank you