← Return to MAC Big Three Side Effects

Discussion

MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

Comment receiving replies
@bellsina71

I don't think she meant that there wouldn't be side effects to anyone else. She said that she didn't have any side effects but everyone's different. And that's extremely true because we all tolerate things on different levels. I'm only on azithromycin and ethambutol, both for about a month, and I haven't had side effects as of yet either. I am grateful for that but I know that some people have horrible side effects. And your doctor should have told you about the side effects, especially the vision side effects in the hearing side effects. Many times doctors nowadays think that we're all looking the stuff up ourselves and reading the pamphlets attached when we pick up our prescriptions. Unfortunately a lot of people don't read those things or look up their prescriptions to see what the side effects are.🙄
Angela

Jump to this post


Replies to "I don't think she meant that there wouldn't be side effects to anyone else. She said..."

I have been on all three meds for over two years. When I told my optamologist that I had been told one could affect my eye sight he knew which one. I see him next week but I notice a hearing loss more than a vision problem. It appears that due to MAC being rare many pulmonologists have never treated someone with it so aren’t familiar with many side effects. I don’t feel up for a debate into what anyone else thinks. I have lost 28 lbs (125 down to 94.6 today) and the doctor I was referred over to told me today I am going to die if I don’t stop losing weight. He didn’t agree that the dizziness is related to MAC even though everything I read online about each med said ‘severe’ dizziness was a side effect.