← Return to Polycystic Liver Disease (PLD): Let's support each other

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@erikaclark

Your best bet for a referral is to ask your GI doc. Also, a nearby University Hospital is always a good resource. I will ask my team if they have a suggestion when I see them at the end of the month.
I have 3 sons. Two of my sons were diagnosed from ultra sounds and an MRI while going through the evaluation process to be my live donor. I knew that the chances were one of them would have PLD, I was shocked when two of them were diagnosed. My oldest son has a few cysts but not PLD. They are all healthy young men. Their doctors will monitor but have no concerns at this time.
I was diagnosed by ultrasound when my Primary doc ordered it for complaints of discomfort and pain in my abdomen. We had no idea that there was a family history of PLD. When I was diagnosed and began asking questions, we discovered that it was mentioned in a report from an MRI my dad had but it wasn't a problem so he had never shared.

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Replies to "Your best bet for a referral is to ask your GI doc. Also, a nearby University..."

Again, thankyou.What is the distinction between "having a few cysts" and the diagnosis of PLD? The number of cysts?How fortunate one son was clear for your transplant. How fortunate you are to have three. 

Abbey

On Wed, Mar 22, 2023 at 12:42 PM, Mayo Clinic Connect wrote:
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