← Return to MAI and Sarcoidosis

Discussion

MAI and Sarcoidosis

MAC & Bronchiectasis | Last Active: May 11, 2023 | Replies (5)

Comment receiving replies
@jau1

Yes, I am 71 yr old female. Have had sarcoidosis for over 15 yrs and take 2.5mg of prednisone every day. I was diagnosed with MAC 18 monhs ago . Taking big 3 for that. Seems I live well with sarcoidosis, but even that low dose of prednisone has had side effects. I rarely think about my sarcoidosis . Hope that helps. Losing weight from clofazamine though!

Jump to this post


Replies to "Yes, I am 71 yr old female. Have had sarcoidosis for over 15 yrs and take..."

I am a 54 year old female. This helps a lot and thank you for replying. What do you take the Clofazamine for? I weigh @ 115 and they initially put me on 60mg prednisone a day. That caused my hair to fall out and all sorts of other bad stuff. I am not on 10mg of Methotrexate for the Sarcoid but so far it hasn't improved. Thank you! Warmly, Christy