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Post covid neuropathy/bfs?

Neuropathy | Last Active: Apr 15 8:49am | Replies (54)

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@seachel

The symptoms you describe sound very familiar! I’ve ended up with neuropathy after my first dose of Pfizer vaccine in May of 2021 (I’ve had covid since then too). It was finally diagnosed as length dependent axonal sensory neuropathy a by nerve conductivity testing (after I had to insist!) in Dec ‘22. Studies I have read about post-Covid and post-vax neuropathy and paresthesia (those horrible sensations in your legs) can be an autoimmune response - and very hard to test. They are being treated with some success with steroids or IV immunoglobulins. I’ve struggled to find anything that helps with the ‘fizzing’ legs and burning feet (particularly at night) as I don’t tolerate most medications. I’m currently trying CBD (2 months in) and I’m now adding PEA to see if that helps. Some nights are OK, others are a nightmare. I’ve been given a prescription for prednisone, but the potential side-effects scare me a little, and want to give the CBD a good trial to see if that helps, as I have no side-effects from it. The PEA, in combination, is supposed to help with nerve pain too. I also use compression socks at night, the minute I notice my feet getting hot. When all else fails, I take a few Advil, and that helps - which also makes me think it is an inflammatory response. I hope there is something there that will help.

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Replies to "The symptoms you describe sound very familiar! I’ve ended up with neuropathy after my first dose..."

I am sorry for your pain. I was told that this could be viral and testing was not always accurate. It is all so frustrating. The doctor just switched me from Gabapentin to Lyrica starting tomorrow. The Gabapentin was working to subdue the symptoms but not prevent them completely. Has anyone had successful symptom management with Lyrica?
Kat

I have sensory and motor nerve damage after the Covid vaccine x 2 that is slowly improving. I control the nerve pain in my feet at night with 5% lidocaine patches prescribed by a podiatrist. To promote absorption of the lidocaine, I place a patch on the top of my foot where the skin is thinner. The patches allow me to avoid the systemic exposure to nerve pain medications and the side effects. Besides, the medications did not control the nerve pain.

Hi There,

I too have the exact symptoms you describe after my Pfizer vaccine around two years ago. My symptoms slowly get worse and no doctor can explain why? Wondering if you have found anything as yet that helps this debilitating condition? Kind regards Martin