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Lost with no confirmation of NETs origin: Innumerable liver lesions

Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)
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@stevestenberg31

My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen 2X one month apart after weekends of eating big meals drinks out etc. We thought maybe gallstones so i went in for an ultrasound my GP recommended. They found leisons on my liver that turned out to be NETs that spread from my small intestines im currently on my second monthly injection of Somatuline (aka Lanreotide). The side effects vary by week. Im assuming based on my diet and the slow release of the treatment. 🙏

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Replies to "My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen..."
stevestenberg31 | @stevestenberg31 | Mar 21, 2023

Im an otherwise healthy 55 yr old, so i thought. And no surgery has been recommended to date

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Teresa, Volunteer Mentor | @hopeful33250 | Mar 21, 2023

Thanks for providing more information on your symptoms and the process of getting a diagnosis. Is the Somatuline helping with your symptoms?

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kim1965 | @kim1965 | Mar 22, 2023

@stevestenberg31
My wife@Kim1965, in April 22 diagnosed with mass on pancreas and also too many lesions on liver to count. The short story is after 9 months of Chemo (pills), Lanreotide, she had 80% reduction in both and had surgery to greatly reduce the cancer. Have faith in your cancer team to come up with a plan to beat NETs.

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