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Long Time Survivor With Concerns re Metastasis
Neuroendocrine Tumors (NETs) | Last Active: Oct 5, 2023 | Replies (38)Comment receiving replies
Hello, all my fellow NET travelers. I saw Dr. Dasari at MD Anderson. He gave me three choices to deal with my NET: do nothing, but have a scan every few months to track change; start Lanreotide treatments; start PRRT treatments. I chose the Lanreotide, and have had my first shot. Side effects have not been terrible, and are mostly gas, intestinal cramping, and today, 5 days in, burning in my stomach that is likely gas/acid. I will go back to MDA in July or have my next scan done with my local oncologist.
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I'm also on Lanreotide...have had two injections so far. I have 3 TACE treatments with the first one starting next Friday. They are treating my liver in thirds...treatments on 3/31, 5/ and 5/31. 7am arrival, procedure at 1pm, release the next day around 1pm. I have similar Lanreotide symptoms, as well as itching and pain around the injection site that goes away after about a week. The plan is to have the TACE kill as many of those little cancer cells as possible then monitor via petScan and hope the Lanreotide keeps the cancer stable for as long as possible. Going to get a 3rd opinion as my current oncologist/radiation team says surgery to remove will never be an option and that doesn't sit well with me. Best of luck with your journey!