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Lost with no confirmation of NETs origin: Innumerable liver lesions
Neuroendocrine Tumors (NETs) | Last Active: Mar 31, 2023 | Replies (77)Comment receiving replies
Hello @stevestenberg31,
I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion on Mayo Clinic Connect. You mention that NETs were found in the small intestine. I am a 20-year survivor of NETs in the upper digestive tract. My NETs were found incidentally during a routine upper endoscopy, I had no symptoms.
If you are comfortable sharing more, I'm wondering what symptoms, if any, led to your diagnosis? Has surgery been suggested?
Replies to "Hello @stevestenberg31, I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion..."
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My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen 2X one month apart after weekends of eating big meals drinks out etc. We thought maybe gallstones so i went in for an ultrasound my GP recommended. They found leisons on my liver that turned out to be NETs that spread from my small intestines im currently on my second monthly injection of Somatuline (aka Lanreotide). The side effects vary by week. Im assuming based on my diet and the slow release of the treatment. 🙏