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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome
Chronic Pain | Last Active: Aug 16 2:32pm | Replies (305)Comment receiving replies
Hello Ben,
Thank you for your reply. It really helps to talk with people who've had the procedure. Another question is have you noticed any difference in your bowel or bladder functions?
I am relieved to hear your muscle function is normal. I have an imaginary vision that severing the nerves will leave me with no leg function, unable to walk again. I used to walk and hike for exercise, and haven't been able to in years. I have lost some of my identity from ACNES, and my hope is to be able to 1) sleep on my left side, 2) go for a mile hike without suffering every night for weeks from the unbearable pain.
Lastly, I got up the courage to call Dr. Gillespie's office yesterday. I got the instructions to gather all my records and send them to him. He will review my file and then we can set up an appointment. He understands that I am a long distance away (in Kansas) and he can give me an initial evaluation by long distance.
Gratefully,
Susan
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I understand exactly what you're saying. I did not have a life for 3 years. I could not sleep on my side and sometimes the weight of the covers on my stomach would cause such excruciating pain. Was common to cry getting dressed the pain was so intense. I feel for you.
I had no issues whatsoever with bowel or bladder control or sensation. There was a small concern that a part of my abdominal muscle might not work but that wasn't the case. It will not effect the use of your leg.
I'm glad you got in touch with them. I flew down from Alberta, Canada and stayed at a hotel in Phoenex. There's one right by the hospital. They have a discount for patients of St. Joseph's. Totally worth the effort!
Ben