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Diagnosed with MAC but not being treated
MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)Comment receiving replies
Yes, my dr. wants to wait until my symptoms become debilitating. I am going for CT scans every 6 months and providing a sputum sample. I have bronchiectasis and MAC. As for me, I am scared of the big 3 and am in favor of waiting. I am doing vest compression 2x per day and my dr. just prescribed acetylcysteine 100 mg/mL (10 %) solution that I will use in my nebulizer 2 or 3x per day. Thus far my symptoms are a cough and slight fatigue. Good luck to you and thank goodness for this support group!
Replies to "Yes, my dr. wants to wait until my symptoms become debilitating. I am going for CT..."
Why would you wait until your symptoms become debilitating? By then you will be older and less able to fight it. Just food for thought. ( irene5)
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I'm glad to see you are getting some good answers from your doc. Are you also using 7% saline nebs? There is good evidence that it can help keep the MAC germs in check, or perhaps even reduce them.
I was still MAC positive in 2019 when I stopped the antibiotics, and 7% saline plus airway clearance (Aerobika and Huff Coughing) have kept me healthy ever since. It seems from what I have been reading here recently that more docs are watching and waiting before starting the antibiotics if symptoms are not severe.
Sue