Very good analysis. I do walk with you in that if we somehow could unite, such as cancer groups (which I am a cancer survivor as well; oddly two years before my MAC/NTM diagnosis). We could be loud and proud to try to get something for the next generation. I've done my part in the cancer thing with giving major blood for genetics research since all three of us sisters had it yet not our mom strangely. I am trying to give back by reaching out to the few I know and share knowledge. Until it's out in the open in a big way though, not much progress will be made. There are strong support groups, but no empowering groups to help the cause of first awareness and next research. I've shared with women along the way that I felt could possibly have this. I would say the main reaction is denial (I get it; I was there) and usually they do nothing about it. Not even my own sisters will be tested for it. "If we don't test, we don't have it." I totally get it. They're doing fine, so why get tested. I do believe there are many millions more out there. It's showing up in third world countries more as well as our more supposedly medically advanced countries. I just can't see the current treatments being very helpful in third world countries. Most people can't do this regime to stay healthy as it is in this country. It's staggering to do the nebulizing treatments daily and then if one has to go on the 3 drugs once again and sometimes again and again. It seems that there needs to be an immunological solution. Ideas floating. Action lacking. Let me know if you think of anything! Thanks for being part of the group and sharing your ideas.