← Return to Looking to connect with people who have non-diabetic neuropathy

Discussion
Comment receiving replies
@efgh1020

Neuropathy has a wide spectrum, and in my experience, neurologists are the doctors best equipped to diagnose and possibly offer treatment. My Rhode Island neurologist, teaching at Brown University sought a second opinion from her neurologist colleague at Massachusetts General in Boston. They both settled on an autoimmune cause for my neuropathy, based on a number of blood tests, EMG’s, a spinal tap, and a nerve biopsy. I had to be willing to go through those tests and okay their recommendation for iVIG infusions to reduce nerve inflammation. It has also reduced pain, and added to range of motion and strength. There is support here, and support groups through the Foundation for Peripheral Neuropathy, and the Western Neuropathy Association. So, you do not have to be alone in this struggle. That has helped me, and I hope it will help you.

Jump to this post


Replies to "Neuropathy has a wide spectrum, and in my experience, neurologists are the doctors best equipped to..."

I have not seen a neurologist yet. Will be seeing one soon. From there I have to take a test. I believe it is a Test for nerves damages for all over my body I think. Then I have a appointment with an neurologist afterwards. Its been crazy trying to seek answers for what I am going through. No one is listening to me.

What is iVIG? I have been seeing a neurologist but she put me on pregabelin which has proved to be not very effective.

Thank you for the encouraging words that is so beautiful to hear, but if I may ask a question what kind of infusion did you have? I guess I am asking what did it consist of if you don’t mind sharing.