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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Aug 16 2:32pm | Replies (305)
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@benacnes

Hello Susan,
I'm glad to be able to help! I guess the only thing I could add would be that I have some superficial numbness to the right of my belly button. Muscle function is normal. For me it was a miniscule price to pay to be ACNES pain free. Are you a long distance from Phoenix? Drm Gillespie and staff are very friendly and helpful. Once you have your initial appointment you won't be worried.

Ben

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Replies to "Hello Susan, I'm glad to be able to help! I guess the only thing I could..."
susanders | @susanders | Mar 21, 2023

Hello Ben,
Thank you for your reply. It really helps to talk with people who've had the procedure. Another question is have you noticed any difference in your bowel or bladder functions?

I am relieved to hear your muscle function is normal. I have an imaginary vision that severing the nerves will leave me with no leg function, unable to walk again. I used to walk and hike for exercise, and haven't been able to in years. I have lost some of my identity from ACNES, and my hope is to be able to 1) sleep on my left side, 2) go for a mile hike without suffering every night for weeks from the unbearable pain.

Lastly, I got up the courage to call Dr. Gillespie's office yesterday. I got the instructions to gather all my records and send them to him. He will review my file and then we can set up an appointment. He understands that I am a long distance away (in Kansas) and he can give me an initial evaluation by long distance.

Gratefully,
Susan

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