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Hi Helen,

Thank you SO much for your response! I agree that this is a very good plan.

One issue I'm having is that I can't seem to get into the Mayo portal (I keep getting bumped off after it gives me an error message that it is having trouble communicating with the server). I haven't been able to pay my most recent bill, access my tests or send a message to my GYN ONC team. I will call the nurses first thing tomorrow.

I was able to get a LITTLE sleep last night and have kept busy today, trying to imagine that I've caused this flare-up by something I've been doing.

My guess is that someone from either the local or Mayo team will want me to get this checked soon, either with a mammogram or an ultrasound. It does still feel frightening when I think about it (or, heaven forbid, look online), but I am telling myself I can't DO anything about it until I have more information, so shouldn't stress over it if I can just enjoy the moments in my day. It was sunny here today and I was able to walk to a neighbor's with my dog and husband, and I was able to attend a class that included guided meditations and very, very gentle stretches. I feel blessed to have had these opportunities over the weekend.

Again, I am grateful for you support and everyone else's from this group.

Sending hugs to all who are waiting, worrying or facing something painful or frightening,


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Replies to "Hi Helen, Thank you SO much for your response! I agree that this is a very..."

@gynosaur42 Hello, again. Were you able to get into the Mayo Clinic patient portal? If not, did you talk with the GYNOncology nurses? They are so good about answering and getting you to the person you need to speak with. Were you able to find out what they would like for you to do? Once you have a plan it can take some of the worry away. At least that is my experience.

You have such wonderful coping skills. The first, reminding yourself what you can and cannot control is a huge one. How wonderful that you had a sunny day and could walk your neighbor's dog. Much appreciated by the doggie, I'm sure, too! Guided meditations, and gentle stretching all allow for that important body work to get a person away from distressing thoughts and into their body. Can you tell I love these coping skills?

My next Mayo Clinic appointment is close in time to yours. My appointment will be on April 19 when I find that my worries ramp up I tell myself this is normal (for a cancer surveillance appointment). I know whatever the outcome will be OK – radical acceptance.

Thank you for your kind wishes to others in our Support Group. These are sent from me right back at you.