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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Jan 27 10:08am | Replies (160)

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@gmabecky1955

I have had Lichen Sclerosis for over 2 decades now. Started having symptoms shortly after menopause which my gynecologist attributed it to. It took about 10 years to be diagnosed. My dermatologist actually made the diagnosis. Needless to say I changed gynecologists. Today I see both on a regular basis. Due to the late diagnosis I do have scar tissue and have a couple of spots biopsied. For years I have used a compound of Balneol cream compounded with 1% hydrocortisone once to twice daily with Estrace cream a couple of times per week. Of course Medicare doesn't care to pay for any compounds. In the past year I found that Aquaphor 1% seems to work even better. This is over the counter and much less expensive. I also need to use regular Aquaphor in my anal area now, too. This brings me to underwear as all that cream can be a problem. Jockey makes a worry-free moderate or heavy underwear that has worked great. I enjoy taking a spin class or riding my bicycle so I "grease" up and wear the worry-free as it is padded. Everyone is so different but wanted to let you all know what has worked so far for me.

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Replies to "I have had Lichen Sclerosis for over 2 decades now. Started having symptoms shortly after menopause..."

@gmabecky1955 it’s wonderful that you had had success with living with lichen sclerosis! I included a link to another discussion on lichen sclerosis where your information will be so welcome!
https://connect.mayoclinic.org/discussion/lichen-sclerosis-anyone/
Has your skin stayed healthy even with the use of all the creams?

Depends how one defines healthy! No, my skin is not healthy since it was 10 years from onset of symptoms until diagnosis. At least I no longer notice much. I also should have mentioned that Charmin toilet paper with aloe vera has been nice.

Hello @gmabecky1955. You will notice that I have moved your helpful post into an existing discussion on Lichen Sclerosis that @becsbuddy recommended. Thank you for sharing what has worked for you so that others may also be helped.

Did this come as a result of trial and error over time?

Wouldn’t a long Poise pad work as well?

Thank you for the info. I am going to try the Aquaphor 1%.