Diagnosed with sarcoma? Let's share

Update stage 4
Roswell has been seeing an orthopedic doctor regarding a mass that showed up on her hand after a hand injury last may (She saw a dr. Right after the hand injury to make sure nothing was broken). We went for an MRI two weeks ago, and we were referred to a specialist at LEVINE CANCER INSTITUTE (Rare and complex). The doctor from LCI scheduled us for an ultrasound thinking it was vascular related.
Fast forward to Friday she was having extreme right knee pain with a fever. Saturday morning she still had extreme knee pain and wouldn't walk. I took her to LCH ED to get her evaluated. Her calcium level was extremelv elevated so she was admitted for fluids and Lasix. Since being here she is now on fluids, Lasix, calcitonin, potassium, magnesium and pain medicine.
She got an MRI of her pelvis and lower extremities, along with the biopsy of her hand. Mid scan the radiologist called her doctor to notify him of abnormal bone marrow pattern in all the scans.
Today we got the results and Roswell has
Rhabdomyosarcoma. She will need to have an echo, MRI of her chest, bone marrow biopsy/ aspiration, PET scan and a port put in, all which will happen sometime in the next couple days. All of these procedures are going to help them stage her cancer and find the best regimen of chemotherapy.
Our whole world has been turned upside down.

Hello, my name is Lisa.
My sweet daughter-in-law (Karla 27 yrs old) has just been diagnosed with synovial sarcoma. She is in the process of getting an appointment scheduled with MDAnderson Houston.

Try and stay strong, I know how you feel as my Dad went from having just a benign small skin tag taken off his back in dermatology to having multiple sarcomas in both lungs - there are some good treatments out there though. I just try to stay positive (as hard as it is), sarcomas are so rare that everyone is so different and what may not work for someone may work for others - mind over matter is a big thing too - good luck with everything. Dad started Trabectadin chemo last week, it’s low toxicity and touch wood has had only slight nausea which has been controlled with anti sickness tablets. This seems a long term option if it manages to stabilise/shrink the lung sarcomas, fingers crossed. Let us know how you get on xx

Good Luck, she has age on her side which is a good thing xx

Good luck I pray for you and your family.

Is there anyone who can give me information about the chemotherapy treatment involving Cyclophosphamide and the first few weeks of receiving it. What’s the norm if any what to look out for.

Hi! My name is Sonny and I am a 49m living in Northern Nevada. I have been recently diagnosed with UPS, undifferentiated pleomorphic sarcoma. I had surgery to remove a tumor the size of 5.2 cm in my right upper thigh area. I am scheduled to have a pet scan and an mri next week so they can determine the next course of action, surgery or radiation.
This is all scary for me and my family. I have a wife and 3 girls 12 and under.
Any kind of guidance or inspirational talk would be great! Thank you

Sonny,
Be positive and may God bless and keep you and your family in perfect peace. 🙏🏾🙏🏾🙏🏾
I was recently diagnosed with Sacroma /leiomyosarcoma and start chemo next week at MD Anderson. Be encouraged, pray and know that it will work out for your good!
🙏🏾🙏🏾🙏🏾

Thank you! God bless you
I hope everything works out for you and your family. I have heard great things about MD Anderson.

Keep us posted.
I have had 2 different rounds of 2 different chemos