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DiscussionLooking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Replies to "Hi maybe I was commicationing to the wrong group. I don't know were to begin however..."
Neuropathy has a wide spectrum, and in my experience, neurologists are the doctors best equipped to diagnose and possibly offer treatment. My Rhode Island neurologist, teaching at Brown University sought a second opinion from her neurologist colleague at Massachusetts General in Boston. They both settled on an autoimmune cause for my neuropathy, based on a number of blood tests, EMG’s, a spinal tap, and a nerve biopsy. I had to be willing to go through those tests and okay their recommendation for iVIG infusions to reduce nerve inflammation. It has also reduced pain, and added to range of motion and strength. There is support here, and support groups through the Foundation for Peripheral Neuropathy, and the Western Neuropathy Association. So, you do not have to be alone in this struggle. That has helped me, and I hope it will help you.
I think a neurologist can put all those symptoms together and come up with a diagnosis. Then you can work on treating each symptom. I have several of yours. For dry eyes, I use Restasis. For dry mouth, Pilocarpine prn. Those are both prescribed. My sweating is most intense on my face, neck and scalp. Every morning those parts of me are sweaty. I carry a bandanna in my car, and stopped trying to wear makeup on my face. Tegretol (carbamazepine) helps a lot with those and other neuropathy issues (palpations, itching). I recently gave up sugar and unhealthy carbs. That only lasted about 3 weeks, but I definitely noticed an improvement in how I felt. I wish I could kick the sugar and carb habit, it’s a constant struggle for me. Anyway, once you get a diagnosis, start reading, reading, reading! You have to be your own expert. Coming here is a great thing to do.