← Return to Papillary thyroid cancer total removal or left lobe only?

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@koh

I had a lobectomy 8 months ago and so far the other lobe does not appear to have cancer. A lobectomy might prevent you from having to take Synthroid which can be tricky to regulate. I had to start Synthroid for hypothyroidism however Im hopeful that my other lobe will work enough to keep the dosage down. I just changed endocrinologists so we will see. Good luck!

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Replies to "I had a lobectomy 8 months ago and so far the other lobe does not appear..."

thank you.

I had been told to increase my synthoid and I just didn’t feel well, so I decided to change endocrinologists to try and figure out if there was a better plan.
I just met with a new endocrinologist and he thinks I might be able to lower my dose of Synthroid; and if my numbers stay low, we might be able to try and lower it again. From what I was told, the usual plan (for Hurthle Cell Carcinoma) is to keep the TSH number as low as possible, however the new doctor told me that some people do not do well with the high dose of Synthroid. He looked at my thyroid numbers before surgery, and said we could try lowering my dose as long as the number stays in “my usual range.” he also said, if the numbers stay in range we might be able to try to keep lowering it…..maybe even stop using it!!! I won’t know until I try it…and see how I feel and how follow up tests go.
I am happy to get to try reducing the dose because it did not seem to agree with me. ( I had suggested to my previous doctor looking at my thyroid numbers before I had the lobectomy, however she did not think it mattered or would help…..I prefer trying things out before dismissing them!) I am hopeful that I will fell more like my self again.