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Peripheral Neuropathy - Anyone else?

Neuropathy | Last Active: Aug 9, 2023 | Replies (110)

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@suzed

I must have bought 30 pairs of shoes after a revision procedure went wrong two years ago that gave rise to peripheral neuropathy and CRPS. None felt comfortable walking with inflamed metatarsals and numb toes.

Used to walk for miles, now limp around the supermarket. Feel very bitter since this never should have happened, but I didn't have enough 'proof' for medical malpractice suit. This WAS elective surgery after all - MY decision, and MY ruinous outcome.
Is the only recourse pain pills or a spinal cord stimulator implant?

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Replies to "I must have bought 30 pairs of shoes after a revision procedure went wrong two years..."

Not sure what surgery you had, but I'm sorry & know how you feel. I had vein ablation a year ago that made my neuropathy so much worse. Of course, I was told that increased circulation would be so great, but instead they banged into nerves during the procedure. Now I have numbness & swelling that I never had before, added to the pain. "Used to walk for miles, now limp around the supermarket" sums it up for me too (as well as the bitterness). This shoe is not bad: Naturalizer Macayla Pelican Grey Sneakers. You can have a look on Ebay. I just bought another pair this morning. They have a zipper on the side, so if they start feeling tight, you can just unzip them. Not a long haul walking shoe, but who can do that anymore, right?

I have tried the spinal stimulator. As far as working, it did as promised, except I was under the impression the battery would last much longer than it did. Mine lasted a little over 2 years. When it was replaced, and the stimulator moved just a little because it turned out to be too close to my spine, it became infected. I had to be rushed to the hospital, and it was a mess after that. That was right before the Covid came out . Days before!
I have since been taking Lyrica. I am very pleased with it.

I went in to get a spinal pain stimulator. Walked in the surgery room did not walk out could not walk at all. The pain in my legs after I woke up from waist down was numb hurt like no other pain I had ever had and could not walk . Went in hospital they could not understand how I had instant nuropathy and the pain I was in . they could not even touch my legs at all . They had to cup there hands under ankles to help me move them. This devastated me . Not being able to walk and the pain . This happened in a 1.5 hours time . They sent me home took 3 people to get me in van from the surgical center. When I got home was crying in pain so bad and could not even stand to walk in house. Luckily my youngest son pretty much picked me up and put me in a wheel chair . We called ambulance to take me to hospital. Them at the Dr office surgical center the doctor I had he had given me 5 differant pain meds to help and they was surprised I was still awake and coherent at hospital. On top of that they could not give me anything because of all the meds they had given. They kept me It took 4 days before I could even stand for 30sec. I was awake for 4 days straight also. They finally said if i was not able to sleep that night they would have to put me asleep to help me. Went to a rehab after that hospital stay 7 days in hospital then rehab hospital 2.5 weeks. I had to basically learn to walk again . Ended up in rehab 2.5 weeks having infections on top of it all . 3 differant types. They called in the top infection doctor here . He had to make the pain Dr take out the stimulator. He did not want to and they had words in hallway out side my room. He told him to clear his schedule it was at 8 am next morning . He said if it dont come out she will die . The infections are killing her. He said he had given me the strongest antibiotics out there to treat infections they was not working much . The nurses and doctors was very worried that i might die from it. They could not understand why this was happening any of it for it was new for them. I agree I really felt bad and could not eat or sleep well I would only get like 2 hours at a time for the pain was awful plus was sick from all meds they was pumping in me.I left there and went into long term Rehab . Was there where I learned to walk with walker and if long way to use wheelchair to go anywhere for I was told to not walk out side my home . So I went from walking to not walking with out the use of help. as in the use of a walker wheelchair for the rest of my life. I'm going on 7 yrs now since then still have nuropathy due to this. Down both legs from waist down really . Had to learn how to know when I had to use restroom to do both . Have had many accidents with that . But it did improve about 10 percent on that part . But that's it . I went from a viable walking life to a seditary home life . I was a CNA for 35 years . I miss not working but can't. I can't stand in one spot for longer than 3 min . And can't walk over 25 to 30 feet in home then have to sit down . Has anyone else had this happen . For what doctors and lawyers have said they never have seen this ?? . Could not get a lawyer to take case said they don't know if I will improve or not . Well I never did. So don't know why but I have to live with this . Pain meds and nurve meds was added to my daily routine . Please if anyone has seen this or has had this happen please let me know . Thanks for reading my story.❤️