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New Daily Persistent Headache

Chronic Pain | Last Active: Mar 27, 2023 | Replies (140)

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@nguyening

Have you found anything to be helpful or are you still dealing with the headache? I was recently diagnosed with New Daily Persistent Headache. (Not sure why they don’t call it Old Daily Persistent Headache because we have it for years.) Mine started July 29, 2019
so it’s 3.5 years old. It’s becoming harder and harder to deal with having it. Thankfully, it’s usually low on the pain scale and mostly ignorable. I recently have had more days of it flaring up, though, and I feel like it will literally drive me insane. I have major depression and anxiety, as well as currently an acute flare-up of chronic back and hip pain. Some days it’s just too much for me to deal with emotionally. No one seems to fully understand the idea of a headache being nonstop for years and years without a moment of reprieve. My only reprieve is during sleep, once I get past the evening tinnitus.

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Replies to "Have you found anything to be helpful or are you still dealing with the headache? I..."

Oh, hello everyone. It looks like I have joined the correct thread for NDPH. I will try to read through from oldest to newest to gather ideas to present to my neurologist. I am currently waiting to be seen at Jefferson Headache Center in Philadelphia.