I was diagnosed in January 2020, grade 3 NETs with tumors in liver, lungs, pancreas, bones, adrenal gland—all over. Incurable and inoperable.
I had 62 rounds of chemo until Oct 2022, as scans showed tumor growth when I had been stable for quite some time. I had my first PRRT treatment in December, second in early February, and will have my third at the end of this month. They did a scan before second treatment and saw a darkening of tumor areas—which they called promising as it could be showing dying tissue. I will not have scans again until just before my fourth treatment at the end of May.
I’ve had some fatigue just after treatments, but otherwise, side effects have been manageable.