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I understand the mycobacteria is everywhere and in everything all of us are exposed to on a daily basis. Maybe it’s a moot point after you are already infected, but research on particulars, ie: are there clusters in specific areas, are there more verified cases in one state as compared to others, is there a way to negate reinfection-short of moving to another area, etc., these things could affect how and where you live. Should you use protection (such as a mask and gloves) when working outside, should your water be tested(as I’ve read some bacteria can thrive in certain types of water pipes), and followups on peoples’ health who have undergone treatment.
I did not join this site to express or defend my thoughts on research and it’s funding of MAC, and there is so much unknown about it, but I do believe having as much knowledge as possible is important and that is evidenced here with all of the great information shared among the many participants.
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Based on my journey since 2015 and what I know. ..I have had all of these questions for many years and have found few answers. Basically we are in a population of people in which there is little/no interest in giving research money to! The AIDS epidemic gave more research into MAC because they found that population started getting MAC/NTM more. Not much went forward decor we still know it’s more prevalent in low immune systems. My personal belief is that it is just not widely tested still at all. It is found to be more prevalent in certain communities for example in Hawaii. Well is that because of Hawaii or astute doctors and/or active health advocates in NTM/MAC community? Most doctors other than most pulmonologists don’t even know what MAC/NTM is. They have too much wise on their plate. I think until the MAX/NTM community gets active advocating it goes nowhere. I feel I’m in a secret society of medical unknowns and only know 5 people in my world who have it and that’s after much reaching out quietly to my doctors sharing my personal info and giving pet
Issuin for them to share my info so we can share info. Knowledge is power!