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Anyone out there with Erythromelalgia?

Autoimmune Diseases | Last Active: May 27 8:58am | Replies (308)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@mjohn Your erythromyalgia sounds like a real problem. And it sounds like the medicines weren’t working for you. Have you thought about getting a second opinion? You could research medical centers of excellence in your state or look up the Mayo Clinic’s Care Network. Link: HTTPS:// mayoclinic.org/about-mayo-clinic/care-network/members. You need a good diagnosis and proper care!
Is this something you would think about?

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Replies to "@mjohn Your erythromyalgia sounds like a real problem. And it sounds like the medicines weren’t working..."

Yes, my neurologist seems to ignore it. He put me on PT for balance, but I only lose my balance when my ears have pressure, otherwise my balance is good.