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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@dlynn1210

I would suggest everyone who is taking the ‘big’ 3 for MAC to google each one. I have been on the big 3 for two years and just now looked each up paying close attention to the side effects. I have been experiencing severe dizziness for well over a year - I even passed out once. I mentioned it to my primary care doctor but a reason was never found. I knew Ethambutol affects our eyesight and one affects our hearing (mine is getting very bad) but ALL 3 produce ‘severe dizziness’! I’m talking about getting out of my chair and walking 6 feet when I have to quickly sit down to avoid hitting the floor. In fact I did pass out once. I have mentioned the dizziness to my primary care doctor - that it negatively affects my life more than anything. When I looked into the side effects for each med ‘severe dizziness on each jumped out at me. At least now I know why!

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Replies to "I would suggest everyone who is taking the ‘big’ 3 for MAC to google each one...."

I have been on the big 3 since last Aug and get light headed. I don't know if it is from the medication or what but last fall my husband and I were at a resturant and I got very sick to my stomach as happens sometimes just the smell of food and wanted to go home and got up walked 5 feet and passed out. I was only out for a few seconds but my husband says I was totally out. The funny think is I felt a lot better in just 5 minutes after. I have never experienced the fatigue but use to have the diarrhea and nausea a lot. My biggest problem now is leg swelling, but don't know if it is from the meds. Has this happened to anyone else?

Sorry you're having so many issues. I always check out the possible side effects of meds - there isn't one that doesn't have any. The one's that I read were possible weren't more severe than the symptoms of the disease. I had baseline testing done on vision and hearing. I haven't had any issues on the big 3 - Only improvement of the disease symptoms. I think everyone is just different on what they can tolerate