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Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Neuroendocrine Tumors (NETs) | Last Active: Oct 28, 2023 | Replies (22)
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@hopeful33250

I appreciate your reply, @sylvian. I see that you have mentioned some different lab results. There is no mention of a Serotonin lab test. You might inquire about this as well.

Here is a list of tests and scans that are often used when making a NETs diagnosis or in following up on NETs.
--Diagnosis and Follow up Tests
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
Your doctor will probably tell you that lab tests alone do not give a complete picture, but that combined with scans, biopsies, etc. are used to complete the picture.

I look forward to hearing from you again. Will you post any other questions or concerns you have?

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Replies to "I appreciate your reply, @sylvian. I see that you have mentioned some different lab results. There..."
sylvian | @sylvian | Apr 1, 2023

I had a follow up with the Oncologist earlier this week. I inquired about a NET specialist, and was informed that they are not NET specialists but they do confer with other Cancer centres about my case . So I’m happy about that . I am also scheduled for an Octreotide Scan on the 26/27 of this month and a bone scan. Pending results if uptake from scan is high, she will refer me to intervention radiology for a liver lesion TACE. Latest Chromagranin A is 39 . No results yet from 5H11A.
I’m just starting my 10th cycle of CapTem and still,so far, have no side effects or noticeable symptoms of NETs . I am so thankful for that ! With that said , I’m anxious about how I would be feeling if I have to do TACE especially with feeling so good right now. Anyone else have this procedure ?
Staying positive !

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