← Return to Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Discussion

Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Neuroendocrine Tumors (NETs) | Last Active: Oct 28, 2023 | Replies (22)
Comment receiving replies
@sylvian

Thank you for moving my post ! And for sure I will continue to share! Because of your reply I now feel I have more questions that I can ask my Oncologist ! The web site you suggested had the nearest NETs specialist in another province.
I have just finished my ninth cycle and will be talking to my Oncologist on the 27th.
One thing I forget to mention in my original post is last 5H11A result was at 189 , up from the last month 144. Chromagranin 39 , down from 41 last month.

Jump to this post

Replies to "Thank you for moving my post ! And for sure I will continue to share! Because..."
Teresa, Volunteer Mentor | @hopeful33250 | Mar 17, 2023

I appreciate your reply, @sylvian. I see that you have mentioned some different lab results. There is no mention of a Serotonin lab test. You might inquire about this as well.

Here is a list of tests and scans that are often used when making a NETs diagnosis or in following up on NETs.
--Diagnosis and Follow up Tests
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
Your doctor will probably tell you that lab tests alone do not give a complete picture, but that combined with scans, biopsies, etc. are used to complete the picture.

I look forward to hearing from you again. Will you post any other questions or concerns you have?

VIEW AND REPLY