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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@dlynn1210

The doctor my pulmonologist referred me to is in Tampa. Let’s just say I was losing hope and he instilled hope in me and my husband. First he asked me a few questions with one being when did I have my last CT Scan before the one in Dec 2022? I honestly couldn’t tell him. He asked if from my current medical group - yes. He called and asked whoever answered if they could check into it for him - and gave them my name and dob. Within two minutes he knew it was 2021 and for results to be sent to him. It may sound crazy but after 2 1/2 years of having my other pulmonologist avoid telling me what I may not want to hear (but needed to) it was a relief to hear a possible reason for my huge weight loss - 125 down to 97 in six months. My 2022 results were twice as bad as 2021. He had me do a sputum culture while in his office and walk it over to an adjoining hospital. He said he wanted to see me in 6 weeks (culture results will be back) When his nurse asked me what time did I want to come and I told her any time. She told me he was off that week but coming in just time see me. What doctor does that these days? He said I may have built up an immunity to my current meds so we may have to add a 4th. Everything he said was always displaying confidence we are going to make you better. No woe is me attitude. He even came out to talk to my husband as we were leaving telling him “I am going to take care of her.” I walked into his office hoping and praying he could help (unlike I felt when leaving my pulmonologist office). I walked out believing he ‘will’ help me. I go back next Wednesday.

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Replies to "The doctor my pulmonologist referred me to is in Tampa. Let’s just say I was losing..."

Why would a doctor be hiding something from you? Than is awful! I'm so glad you got your answer. I hope to hear how everything went on Wednesday. I see my ID doctor in a couple weeks to see how my cultures and CT look. I imagine after that treatment will begin. Blessings to you!