Good Morning @lyhay1973
I am very happy to learn that you are seeing a new neurologist this coming April! I can very well understand your feelings!
Based on my experience in the treatment of my epilepsy (temporal lobe), I have felt that many doctors I have seen have treated more the disease and less the patient. The answer you got from your current neurologist, I also got from many doctors I have visited. The first doctor who diagnosed my epilepsy prescribed Lamictal which gave me severe insomnia. When I told him about this side effect, he said to hold on and continue with my professional routine. I got in complete despair and he finally accepted to change the medication after 3 months of severe insomnia. Other doctors I have visited after this one, also had the same attitude. Finally, in 2021 I got the recommendation of my current epileptologist who treats me as a patient and respects me as a human being. As I have already mentioned in another post, I have felt a great difference in the treatment of my epileptologist compared to the neurologists I have seen before him. Being treated by an epileptologist has made a great difference.
My epileptologist asks me for blood exams once every 6 months. For sure it is part of a doctor's job in the treatment of epilepsy.
There is a very nice movie with Meryl Streep that tells the true story of a mother's struggle against a narrow-minded doctor who treats her boy with epilepsy. It is called "First Do no Harm". It is available on YouTube for free, very worth watching it. Here is the link: https://www.youtube.com/watch?v=xY9ZMGK5Hbs&t=13s.
Stay Strong!
Santosha

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