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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@arbakr

It was interesting. It goes under the skin instead of IV. The dose starts low and ramps up over coming weeks. Having it subcutaneously means that eventually I'll only have them every four weeks instead of weekly like it would be if the infusions were IV. They say there are fewer side effects as well. Yesterday's infusion was 100 ml, Eventually it will be 350 ml. I have a big swollen area on my abdomen. The best way I can describe it is like a misshapen pancake under my skin. Lol, that's the best description I've got. Last night it was red and itchy. Today it's still there but not red. just a little itchy and painful when I bend over. It's supposed to go away in 1-3 days. My joints were achy last night, and I barely slept. Today I slept A LOT. I just had dinner, made by my sweet husband. Feel tired but otherwise fine. I get my next one next Wednesday. Thanks for asking!

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Replies to "It was interesting. It goes under the skin instead of IV. The dose starts low and..."

Even tho the infusion isn’t an IV, it sounds pretty invasive with side effects. I hope the swelling subsides quickly after treatment. Everything with needles scares me, but it sounds like you are pretty stoic about it and keeping your sense of humor. Good for you! It seems like it would be easy to become overwhelmed with MAC and all the treatments and side effects and keeping up with it all. Good luck with the infusions! I hope they work well for you.