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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@susanlo

At least you have one under your belt and know what to expect with it going forward. I hope the infusion wasn’t horrible and you aren’t having side effects. Please keep us posted here on how it is going.

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Replies to "At least you have one under your belt and know what to expect with it going..."

It was interesting. It goes under the skin instead of IV. The dose starts low and ramps up over coming weeks. Having it subcutaneously means that eventually I'll only have them every four weeks instead of weekly like it would be if the infusions were IV. They say there are fewer side effects as well. Yesterday's infusion was 100 ml, Eventually it will be 350 ml. I have a big swollen area on my abdomen. The best way I can describe it is like a misshapen pancake under my skin. Lol, that's the best description I've got. Last night it was red and itchy. Today it's still there but not red. just a little itchy and painful when I bend over. It's supposed to go away in 1-3 days. My joints were achy last night, and I barely slept. Today I slept A LOT. I just had dinner, made by my sweet husband. Feel tired but otherwise fine. I get my next one next Wednesday. Thanks for asking!