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Pseudoseizures: When people hear the word they think we are faking

Epilepsy & Seizures | Last Active: Jun 21, 2017 | Replies (6)
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@colleenyoung

Hi @mulligan, thanks for re-initiating this discussion thread. You'll notice that I changed the title and moved it to the Epilepsy & Seizure group. I'm also tagging @coleleeo and @es6903, past members who talked about pseudo seizures a while back.

@dawn_giacabazi, can you tell us a bit more about having seizures reproduced while in hospital, so they can help determine treatment options? Were they able to reproduce them? Was that scary?

Mulligan, have you ever had that done?

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Replies to "Hi @mulligan, thanks for re-initiating this discussion thread. You'll notice that I changed the title and..."
Dawn, Alumni Mentor | @dawn_giacabazi | Jun 21, 2017

Yes @colleenyoung!

Dr Britton managed my care at the time. I was admitted to the hospital where they discontinued all of my medications. I went through a battery of tests throughout the day and night. After about 7 days I finally started having seizure activity including auras which I would get 2pm everyday!! Once we could identify the triggers and types (I have several kinds; Partial complex, Generalized Tonic-Colonic & Petit Mal seizures) we were able to determine the best medication to use.

Was I scared??? No!!! As most seizure patients know all to well, it is far more scary to not know when to expect one. The fear of having one at an unsafe time or place is far worse than during a hospital controlled setting.

NOTE:
NO ONE SHOULD EVER try to stop their medications at home without medical supervision and their physicians directions.

Thank you
Dawn

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