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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@bellsina71

My ID doctor has not ever told me yet to use a nebulizer? I am just really confused. I'll tell you that I have no symptoms of the Mac. None. And I don't know if that's why, I can't cough something up if I tried right now! Even though I have a 3.7 CM hole in my lung right now, I haven't been on the antibiotics long enough for anything to start working yet my last CT scan while I was in the hospital for my surgery a week and a half ago showed that everything in my lung just started trying to heal on its own. The thick wall around the cavity became really thin now and all the little nodules that were all over my lung had largely dissipated. But, my ID doctor didn't say anything about a nebulizer. I'm not sure if I should just get one and do it on my own or what? Thanks for your help
Angela

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Replies to "My ID doctor has not ever told me yet to use a nebulizer? I am just..."

Angela, do you have a pulmonologist or a primary doctor who could prescribe the saline and nebulizer for you? When I was diagnosed, a pulmonologist prescribed airway clearance (nebulizer & saline) twice a day. I balked at doing it. I did not have a cough or any symptoms and didn’t ever cough anything up. She also referred me to an ID doctor who didn’t believe that the nebulizing with saline did anything. After reading from others here how important nebulizing with saline is, I stuck with the nebulizing and also use the autogenic drainage app. I have been able to avoid going on antibiotic treatment and my last two sputums have been MAC free. I no longer go to that ID doctor and do my nebulizing twice a day.