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Hello @libbiehyman and welcome to Mayo Clinic Connect. I can understand your concern, especially not being able to get a diagnosis to be sure of what it is you're experiencing.
You will notice that I have moved your post into an existing discussion on Meralgia Paresthetica that you may be interested in. You can find your post here:
- Meralgia Paresthetica: https://connect.mayoclinic.org/discussion/meralgia-paresthetica/
Here is some additional information that you may find helpful:
- Meralgia paresthetica: https://www.mayoclinic.org/diseases-conditions/meralgia-paresthetica/symptoms-causes/syc-20355635
I want to connect you with members such as @aaroncush @steeldove @lotsofpain @ellenos who have experience with meralgia paresthetica and can offer guidance and share what helped them, in case this turns out to be the case for you as well.
When you read through the symptoms in the last link, does this align with what you have been going through?
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Close to, but not quite--it's the BACKS of my thighs, but maybe that's semantics. Sensitive to temperature and pressure, specifically, decompression. Neurologist and pain doc diagnosed it as idiopathic peripheral neuropathy. A rheumatologist suggested piraformis exercises. No exercises or drugs (mostly pregabalin) have had an effect, and no one has suggested a lateral compression. Neurologist and pain doc specifically said it was idiopathic, and had no idea what was causing it. I've never heard this "meralgia" term yet, but I'll look into it. Kindest thanks!