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I have been in FL since 2016. Have had MAC twice. I was diagnosed oh add in CT after a wicked 20 yr cough and endless infection. After 2yrs on the ARIKAYCE, rifampin, ethambutol, azythromycin protocol I was infection free for 18 months. I now have MAC again and am back on the protocol. In my humble opinion. Infectious disease and pulmonology are complimentary and I need both. I continue to have weird and rate pneumonias and other pulmonary issues. Infectious disease is all about sputum analysis and managing the variety of infectious in that realm. Pulmonologist helps make sure that I’m breathing as well as I can and managing flare ups.
Replies to "I have been in FL since 2016. Have had MAC twice. I was diagnosed oh add..."
I'm so terribly sorry you have it again. I agree. Both doctors are important to have. God bless you.
I totally agree - the 2 specialties are complementary, and I won't see a doc who doesn't agree.
The wicked cough and endless infection are amazingly descriptive of my experience.
Are you also doing daily airway clearance to keep the mucus flowing out of your lungs? For me, this has been the key to avoiding repeated infections.
Sue
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Curious to know what weird pneumonias you have had
I believe I m MAC free after prolonged treatment but now have pneumonia for which no reason has yet been found
Would appreciate knowing which organisms, if you recall