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Flushing after NET surgery

Neuroendocrine Tumors (NETs) | Last Active: Mar 25, 2023 | Replies (10)

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@hopeful33250

Hello @cindyarq23 and welcome to the NETs discussion on Mayo Clinic Connect. You mentioned in your first post that you had, "LLL endocrine carcinoid." I'm not familiar with the "LLL" could you please explain what that means?

I have had three surgeries for carcinoids in the upper digestive tract and while I've not personally had flushing, I know that it is common and is often part of what is referred to as "carcinoid syndrome."

Here is a video regarding carcinoid syndrome.
--Carcinoid Syndrome
https://www.youtube.com/watch?v=0tgGFis5Uz4

Has your doctor offered you any meds to help with the flushing?

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Replies to "Hello @cindyarq23 and welcome to the NETs discussion on Mayo Clinic Connect. You mentioned in your..."

LLL is left lower lobe. That’s where my endocrine tumor was located.

Cindy

No neither surgeon has offered me any type of meds for this.

Cindy