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MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)
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I saw my eye specialist last week and failed my 2nd field eye test and she took my off ethambutol immediately. My infectious disease Dr concurred the following day as I already had an appointment with him. Now I have to see Specialist for glaucoma as ethenbutol can give you it plus my mother went blind from it and it is passed from mother to daughter. But this is suppose to be rare so don't stop taking the ethambutol because of this unless you also have a problem. Good luck, I had my first negative culture last month so it isn't all bad.
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That’s great news you have had a negative culture. It’s too bad you have to go off the ethambutol but better safe than sorry about glaucoma. This is certainly not an easy journey and it sounds like everyone suffers in different ways from both the MAC and the treatments.
Good luck to you as well. It seems you have a good team of doctors that are making quick decisions for you-that’s important that you don’t have to wait days or weeks to make changes to your treatment. I’ll watch for your updates on here.
Thank you for the positive encouragement.