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How do you deal with oral allergy syndrome and histamine intolerance?
Autoimmune Diseases | Last Active: May 18, 2023 | Replies (10)Comment receiving replies
Oh wonderful about the doctor! And yes, self educate and be the detective for yourself!…..it’s really all kind of fascinating and like a jig saw puzzle !…….the carbonation for me acted like a “rotar rooter” on my pipes, if you will, and cut all the phlegm in my throat which was part of the inflammation. And when it’s cold all the better for me as it shrinks what is swollen….again inflammation. The list of inflammatory foods are often different ….actually they are all differnt but will give you a starting place w the agreed upon safest foods. I have had my thyroid out and adenoids so the space in my throat is wide open. Before I went on my elimination diet, I would choke a lot and cough a lot….and I was very glad the thyroid and adenoids and tonsils were not there as I can actually imagine what that would feel like . To that end keep your sinuses open and I use Simply Saline spray by Arm and Hammar….the day and nightime, versions…..the salt spray of them dripping down the throat can help a lot w calming the throat. Also you might try boiling water and putting your head over it ….good old fashioned medicine that still works. Also Epsom Salt baths to relax your muscles everywhere. I do take Effexor time released for anxiety and that keeps anxiety in check 24/7 and anxiety disorders are often comorbid conditions w MCAS. I would take a look at that on line too…Generalized Anxiety Disorder. Very common in families esp the women and often misdiagnosed or undiagnosed!….this is not depression ….it’s a genetic condition . I have 5 members of one side of my family on the same meds in 3 different countries!! Check it out! And I will be anxious to hear how you are doing!! I’m cheering for you!!
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Wow, I'm loving the tip on carbonated water. It really did help with some of the tightness and for some reason it helped me relax the roof of my mouth too. I hadn't even noticed it was so tight, so now I feel like I have a little more room to swallow and breathe freely.
I have been using a saline spray to help my sinus about 3 or 4 times a day and I also believe that helps to keep things working better.
About the anxiety I will definitely check it out, it's already on the plans. I've had panic disorder before but I thought I had overcome it. Before all of this I was actually in a very good place mentally and I haven't needed any meds in years. But this had really kicked my anxiety into high gear again and I even had a panic attack last week. It was awful, I felt like I was going to pass out and I wasn't really happy to remember that feeling. I keep thinking that lowering my anxiety levels to a place where it lets me think rationally it's going to make it much easier to start working on my diet and life from now on, because right now every little thing makes me anxious.
I've been taking prednisone 20mg for about 10 days now and I firmly believe the new allergist is going to ask me to stop tomorrow. I've been spiraling all day thinking about what can happen and how I might die from edema. Like, what the hell, why does our mind does this to us? It certainly works in mysterious ways and it can also certainly be a jerk. I'm getting tired of being bullied by it.
Look, I know I keep answering and it might get annoying, but reading your messages and the ones of other people here are really helping me not feel so alone, like there's a light at the end of the tunnel. I have no words to thank you for your time and your kind, kind words.