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Initial Dosage of Prednisone Impacts Long Term Recovery

Polymyalgia Rheumatica (PMR) | Last Active: Mar 29, 2023 | Replies (20)
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@abbeyc

Do you mind sharing the name of the bioloigic? What are different types of biologics? This terms is new to me
My doc has me on LDN along side prednisone. Maybe LDN is a biologic ?

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Replies to "Do you mind sharing the name of the bioloigic? What are different types of biologics? This..."
redboat | @redboat | Mar 15, 2023

What do you think of the LDN?

I hear it has minimal side effects, but I'm only aware of a couple anecdotal reports on its use with PMR, one of which is here on this site now.

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DadCue | @dadcue | Mar 15, 2023

Hi @abbeyc
The biologic I'm currently on is called Actemra (tocilizumab). It has been FDA approved for the treatment of GCA but not for PMR.
https://www.healio.com/news/rheumatology/20210521/tocilizumab-holds-firm-as-steroidsparing-agent-in-giant-cell-arteritis
Some doctors think it is a game changer for the treatment of GCA. There is ongoing research to see if Actemra will work for PMR. If my experience is any indication, I would say it works for PMR. My rheumatologist wanted me to try Actemra because of my 12 year battle with PMR.

I was unable to taper off prednisone for more than 12 years. I started Actemra on January 1st, 2019. I was off prednisone a year later. I could have tapered off prednisone sooner except for having adrenal insufficiency caused by long term prednisone use.

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