That’s exactly what I have found out too. And there was a push to get funding in FL for research being there are more cases here than any other state but it vetoed by the current governor. I am also actively looking for trials or studies and there are a couple of places in FL (Tampa and Miami)that specialize but i am too far from either to be accepted.
I assume my pulmonologist will start me on the “big 3” when I see her next week. How are you doing on the drugs? Do they test you culture test you every 3 months? How are the side effects?
Thank you so much for answering!

I have been in FL since 2016. Have had MAC twice. I was diagnosed oh add in CT after a wicked 20 yr cough and endless infection. After 2yrs on the ARIKAYCE, rifampin, ethambutol, azythromycin protocol I was infection free for 18 months. I now have MAC again and am back on the protocol. In my humble opinion. Infectious disease and pulmonology are complimentary and I need both. I continue to have weird and rate pneumonias and other pulmonary issues. Infectious disease is all about sputum analysis and managing the variety of infectious in that realm. Pulmonologist helps make sure that I’m breathing as well as I can and managing flare ups.