Thank you for your advice. The 1st and only doctor we have seen so far has been a neurologist. I wasn’t a fan of her to begin with. I just wasn’t happy with her demeanor and her quick response to dismiss any treatment she didn’t prescribe meds for. We did bring up the extreme fatigue we were just dismissed and said that’s okay it’s the only side effect you are having. My daughter has some anxiety nothing crazy was a gymnast we used CBD to help with the recovery of her extreme workout regimen, and it help with her anxiety especially during competition time. The doctor wanted us to stop using that, as she didn’t like it and wanted to put my daughter on more medications. My oldest daughter who is a nurse, met the 1st neurologist for my youngest daughter last appointment with her. We found the 1st neurologist wasn’t a very good at treating seizure disorders. She never ordered blood work ever not even after she put my daughter on medications. After her 2nd Seizure we found that the 500mg was too low as the ER ran blood work. I had to demand the Dr order follow up blood with to make sure the 750mg was in good range. At her last check up the neurologist didn’t want to run blood work again. Even though our primary care Dr said it should be done every 6 months. The neurologist told my daughter it wasn’t her job to order the blood work and monitor the range. My oldest daughter at that point told the Neurologist she was an ER Nurse and it was 100% her job to order blood work to watch the range of her patient she put on medication. The 2nd round of blood work was finally ordered only because we had to fight for that as well. It just hasn’t been a good process for us so far. We are thankful and happy my youngest daughter hasn’t had a seizure in over a year. We see a new neurologist in April and I would like to help my daughter with this fatigue she has and not feel like a zombie and struggle through college and work.

Jump to this post