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Help with side effects of Keppra

Epilepsy & Seizures | Last Active: Mar 29, 2023 | Replies (27)

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@lyhay1973

Thank you for your advice. The 1st and only doctor we have seen so far has been a neurologist. I wasn’t a fan of her to begin with. I just wasn’t happy with her demeanor and her quick response to dismiss any treatment she didn’t prescribe meds for. We did bring up the extreme fatigue we were just dismissed and said that’s okay it’s the only side effect you are having. My daughter has some anxiety nothing crazy was a gymnast we used CBD to help with the recovery of her extreme workout regimen, and it help with her anxiety especially during competition time. The doctor wanted us to stop using that, as she didn’t like it and wanted to put my daughter on more medications. My oldest daughter who is a nurse, met the 1st neurologist for my youngest daughter last appointment with her. We found the 1st neurologist wasn’t a very good at treating seizure disorders. She never ordered blood work ever not even after she put my daughter on medications. After her 2nd Seizure we found that the 500mg was too low as the ER ran blood work. I had to demand the Dr order follow up blood with to make sure the 750mg was in good range. At her last check up the neurologist didn’t want to run blood work again. Even though our primary care Dr said it should be done every 6 months. The neurologist told my daughter it wasn’t her job to order the blood work and monitor the range. My oldest daughter at that point told the Neurologist she was an ER Nurse and it was 100% her job to order blood work to watch the range of her patient she put on medication. The 2nd round of blood work was finally ordered only because we had to fight for that as well. It just hasn’t been a good process for us so far. We are thankful and happy my youngest daughter hasn’t had a seizure in over a year. We see a new neurologist in April and I would like to help my daughter with this fatigue she has and not feel like a zombie and struggle through college and work.

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Back in 2001 I started taking keepra along with the diazepam I started taking in 1995 and both worked great until 2006 when it all gave up. Needed brain surgery on my left hippocampus and have no seizures anymore though I still take Keppra, but with no side effects and I take 1750mg/day.

Good Morning @lyhay1973
I am very happy to learn that you are seeing a new neurologist this coming April! I can very well understand your feelings!
Based on my experience in the treatment of my epilepsy (temporal lobe), I have felt that many doctors I have seen have treated more the disease and less the patient. The answer you got from your current neurologist, I also got from many doctors I have visited. The first doctor who diagnosed my epilepsy prescribed Lamictal which gave me severe insomnia. When I told him about this side effect, he said to hold on and continue with my professional routine. I got in complete despair and he finally accepted to change the medication after 3 months of severe insomnia. Other doctors I have visited after this one, also had the same attitude. Finally, in 2021 I got the recommendation of my current epileptologist who treats me as a patient and respects me as a human being. As I have already mentioned in another post, I have felt a great difference in the treatment of my epileptologist compared to the neurologists I have seen before him. Being treated by an epileptologist has made a great difference.
My epileptologist asks me for blood exams once every 6 months. For sure it is part of a doctor's job in the treatment of epilepsy.
There is a very nice movie with Meryl Streep that tells the true story of a mother's struggle against a narrow-minded doctor who treats her boy with epilepsy. It is called "First Do no Harm". It is available on YouTube for free, very worth watching it. Here is the link: https://www.youtube.com/watch?v=xY9ZMGK5Hbs&t=13s.
Stay Strong!
Santosha