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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@frankie160

Hi arbakr @arbakr ,
Diagnosed with MAC, not sure what kind, in May, 2022, and Bronchiectasis and emphysema more than 10 years ago. Needed Chemo treatments for a breast cancer diagnosis earlier in the year which did complicate my treatment for MAC and the Big 3.
I have been on the Big 3... A, E, R,,, since October, 22 with short stints of omitting the R because of interactions to other short term meds I needed.
I have checked my eyes and hearing every 3 months and so far so good.
My side effects from the Big 3 since August have not been a problem for me so far and also interested to hear what others will say about their experiences....
PS Your urine is likely to be the color of a bright orange soda from the R that occurs for a day or two after each dose.
Please let us know how you are doing....and good luck with all!
Flo @frankie160

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Replies to "Hi arbakr @arbakr , Diagnosed with MAC, not sure what kind, in May, 2022, and Bronchiectasis..."

Thank you! I see my ID on April 3. I'm assuming I'll get started then. Meanwhile I had my first immunoglobulin G infusion yesterday. Keeping life interesting!