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MAC Big Three Side Effects

MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)

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@lauraadam2425

Hi, I have been on the 3 big ones for mac since August of 2022. Last week I failed my second field eye test and my eye specialist took me immediately off ethambural. The next day I saw my infectious disease Dr and he concurred. I have heard that this is a rare side effect, but one you should be aware of it if you have eye problems. I haven't had the fatigue problem but do have the nausea and have to lay down for 20+ minutes when it is bad. Fortunately I am retired as I am 76 and don't have to deal with fitting work into my schedule anymore. It did take 3 years for them to diagnose me and a loss of 100 lbs. Once I found the right Dr's things got on track and last month I had my first negative cultures which is good since I have tested possitive for 4 different bacterias. I still have to take the meds for another year with NO positive cultures or I start all over!
Good luck and I am hoping you get good results.

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Replies to "Hi, I have been on the 3 big ones for mac since August of 2022. Last..."

Thank you for sharing about your eyes. I have procrastinated taking care of this, but I realize I must; thank you!

With you testing positive for 4 different bacteria did they diagnose you with both Sarcoidosis and MAC?