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@lorettogibbons

I have idiopathic small fibre neuropathy and have a chronic itch has anyone any ideas to calm this itching????

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Replies to "I have idiopathic small fibre neuropathy and have a chronic itch has anyone any ideas to..."

Welcome @lorettogibbons, You are not alone with the chronic itching. You might want to read through this existing discussion on the topic to learn what has helped others:
--- What do you do for Neuropathy itch?: https://connect.mayoclinic.org/discussion/what-do-you-do-for-neuropathy-itch/

As @johnbishop referred to existing discussions I’ve followed, I’ll add that my dermatologist recently suggested over the counter Lipikar lotion. I can’t tell you how pleased I’ve been. I bought mine from Amazon.

Is the itch deep inside your foot, hand, etc., not on the surface? That drives me nuts! THC works for me in that I forget about the itch as soon as I can calm down and be still for awhile.

I just read through some of the suggestions on the previous thread. You will see that what worked for one patient was oxcarbazepine, which is a seizure medicine. The itch is most likely neurological (I’m not diagnosing) which is why topical creams don’t work. A seizure med would help. If you are on Gabapentin, you might ask about switching to oxcarbazepine, or another, which is my miracle drug, carbamazepine (Tegretol). I recently started having itching deep in my breast, and had a flashback to 20 years ago, when I had numerous scans for breast itching ( it drove me crazy). I also had scalp itching, and tried every shampoo out there. I know now that I was suffering from SFN and these were symptoms.