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Discussion(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Oct 29 5:15pm | Replies (9350)Comment receiving replies
Replies to "Diagnosed yesterday. I had a “poor pitiful me day” yesterday and now I’m ready to fight...."
Welcome to Mayo Connect. Yes, a MAC and/or Bronchiectasis diagnosis often leads to a "poor pitiful me day" - hardly anyone who doesn't have these conditions has ever even heard of them! And early reading sounds so dire...
Let me begin by saying - a "Big 3" or 5-medication regimen for MAC is not a given. Depending on the severity of your condition, and the presence of other medical conditions, more conservative treatments can be tried first.
For early reading to become familiar with your condition, I recommend:
https://www.lung.org/lung-health-diseases/lung-disease-lookup/nontuberculous-mycobacteria and
https://my.clevelandclinic.org/health/diseases/21144-bronchiectasis
And feel free to read posts from all of us on the discussion, and respond with any questions you might have.
Can you tell us a bit about what led to your diagnosis? What tests have been conducted so far?
Sue