Connect
← Return to MAC Big Three Side Effects
Discussion
MAC & Bronchiectasis | Last Active: Apr 19, 2023 | Replies (165)
Comment receiving replies
My eyes have really bothered me a lot since being on the 3 meds for MAC. Looks like I might have to make some changes. Six months on the meds, and NO changes for the better; none, but at least, no worse either.
I have extreme fatigue and get very weak, but I don't know if it is from the MAC or not. I was fighting this for nearly 2 years before they discovered the MAC. No idea how long I have had it before they realized it.
Anyone have ideas for the weakness/fatigue? It puts me to bed every single day; sometimes 3-4 times. As you can imagine; this has gotten pretty tough to deal with. Thank goodness I have a wonderfully patient husband!!
Replies to "My eyes have really bothered me a lot since being on the 3 meds for MAC...."
The only side effect I had from the Big 3 was ETREME fatigue.
Connect
Hi, I have been on the 3 big ones for mac since August of 2022. Last week I failed my second field eye test and my eye specialist took me immediately off ethambural. The next day I saw my infectious disease Dr and he concurred. I have heard that this is a rare side effect, but one you should be aware of it if you have eye problems. I haven't had the fatigue problem but do have the nausea and have to lay down for 20+ minutes when it is bad. Fortunately I am retired as I am 76 and don't have to deal with fitting work into my schedule anymore. It did take 3 years for them to diagnose me and a loss of 100 lbs. Once I found the right Dr's things got on track and last month I had my first negative cultures which is good since I have tested possitive for 4 different bacterias. I still have to take the meds for another year with NO positive cultures or I start all over!
Good luck and I am hoping you get good results.