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Treatments for Lichen sclerosis besides steroids

Autoimmune Diseases | Last Active: Oct 19 5:47am | Replies (173)

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@arlene55

Clobetasol is not for me. It gets m neurological type reaction. I used dovobet odd thin about it is the last script for dovobet I got the generic brand last time dovobet was ordered which caused a reaction like I had from the first steroid. I have had it for years now at this point in time I have had one trip to the cancer clinic as the lichens had advanced. Fusing scarring ect. I also have a disorder called multiple chemical sensitivity...I react to many drugs and chemicals used in daily life. The clinic surprised me by offering no drugs which I was happy about. No new drug means no new drug reaction win win. Here is the real win the treatment was to soak in warm water then apply an essential oil 3 times a day. Emu oil I was told would b the best oil for healing this problem. I chose to use almond oil because I know it does not cause a reaction. I had a bottle of Bells pure almond oil in a glass bottle and a bottle f Aura Caviar sweet almond oil has vitamin E and sunflower oil added. I started with the Bells because it was the least reactive being single ingredient and in glass. I could not believe how well it worked. I used the small bottle fast. Then used the Aura which was thicker still better than nothing but I found itbult up in my skin after a few days caused a flare. I was told not t use any soap ever but I had to wash off the build up. I used the only soap I tolerate with my mcs which is Bambobaby..not bamboo it s sold but bambonature.usa.
I had to use the dovobet non generic to get things to settle.i did no have ny Bells left went back to the Aura.....I use much less than I did prefer Bells will try Emu once I research and settle on which one will be he least reactive. I have had a reaction to Amlodipine which I suspect may be a lychen reaction...it look like much planis. I researched it and learned high oxlate food many of which had been eating can make it worse. Oranges all citrus spinach beans ....also suspect this is all connected. I took a ppi which by the way is listed as one of the rugs among many that can cause a lichen reaction. I am not taking any drugs that can cause a lichen reaction unless it is life or death. Hoping avoiding drugs and food that cause lichens will help the soaking and oiling will keep the lichen from progressing to cancer and slow the fusing bleeding. The emu oil is suppose to help thicken the skin and repair damage. I will report back once I have tried it.

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What foods should be avoided?