← Return to Initial Dosage of Prednisone Impacts Long Term Recovery

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@dadcue

@redboat I'm not suggesting you have reactive arthritis. You have to go with whatever a doctor tells you and I'm not a doctor.

Reactive arthritis is just one type of spondylitis. There are 6 types but that was how they were classified in the past. There has been a new classification system that recognizes just two broad categories.

Peripheral spondyloarthritis (pSpA) typically causes inflammation in the joints and tendons outside the spine and sacroiliac joints.

and

Axial spondyloarthritis (AxSpA) causes inflammation and pain in the pelvis, the spine, or both.

You can also have a combination of both peripheral and axial.

To make it even more confusing ... you can still have PMR in addition to spondylitis.

In my case, PMR was diagnosed about 20 years after reactive arthritis and uveitis. PMR just blended into what was already an inflammatory mess. My rheumatologist mostly referred to widespead "systemic inflammation." and not necessarily any specific diagnosis.

In my opinion, it is the inflammation and pain. that needs to be stopped. I used to tell my rheumatologist that she could call "it" whatever she wanted to. I was at the point where I was willing to try anything.

The biologic I am currently taking was a nice surprise. I like my biologic much better than prednisone. My biologic was targeting the inflammation cause by PMR but it isn't FDA approved for PMR. My rheumatologist just had a hunch that it might work in my case.

There are many biologics that target different things. It is more about finding something that works better than long term prednisone. There is no cure for most autoimmune conditions.

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Replies to "@redboat I'm not suggesting you have reactive arthritis. You have to go with whatever a doctor..."

Thanks. 60 mg of prednisone is mostly stopping my pain, and my last blood test showed "normal" inflammation, although the ESD was still a little on the high side.

You're right, the "name" given to my disease is not important in itself. It's the underlying treatment strategy is what really matters. Some autoimmune diseases apparently linger much longer than others so the tapering schedule might change if it turns out what I have is not PMR. The decision to use other biologics could also be affected.

Whatever I have, it definitely has some differences from a classic presentation of PMR:

1. Inflammation in structures at back of eye (causing double vision)
2. No stiffness or "gelling" in my shoulders or hips
3. Inflammation levels statistically far, far above those with PMR. By my calculations, using Gaussian statistics, I'm at something like a 1 in 250,000 level if it is PMR.

It sounds like you are using tocilizumab. I've heard it targets IL-6 and can really help, especially with tapering.

PS I've learned the hard way recently that "relying on what my doctor tells me" can be very dangerous to my well-being. Yes, they are technical experts, but the decisions and responsibilities are mine. They work for me.

Do you mind sharing the name of the bioloigic? What are different types of biologics? This terms is new to me
My doc has me on LDN along side prednisone. Maybe LDN is a biologic ?